• I am tired.

    I am tired. I am tired of watching babies like mine die. I’m tired of seeing pictures of these babies in the hospital. I’m tired of seeing them be discriminated against. I’m tired of posts from other tired moms fighting the damn system. I’m tired of fighting the system. I’m tired of paperwork and repetitive phone calls. I’m tired of being on hold for hours with insurance. I’m tired of bills and white envelopes covered in red letters. I’m tired of hearing “no” over and over again. I’m tired of watching my husband work 60 hours away from our home and we still never gain any ground. We still are…

  • Some Days

    Somedays it’s just harder than others. Some days I’m completely convinced of all my daughter is capable of. Others I cry because she won’t bear weight on her legs. Some days I can almost see her brain working to form words. Others I cry because she hasn’t said “mama” yet. Some days I’m completely full of fire inside because of her smiles. Others I spend mourning the life she could have had. Some days I am motivated and called to push her through therapy even if she cries. Others I feel like every failure is a stab in my heart. Some days I’m happy she is here and doing so…

  • here.

    If you are facing a new diagnosis and need someone, I am here. . If it’s 3am and you’re crying about what your kid couldn’t do today, I am here. . If you just opened your mail to find another negative therapy eval, I am here. . When you’re so tired you just want to scream, I am here. . When your child is admitted to the hospital for something simple that would never effect a typical kid, I am here. . When a complete stranger makes remarks about your kid being different, I am here. . When your husband and you aren’t speaking to one another because the stress…